Comments on: A Patient’s Perspective on Day 2 of the FDA Public Hearing on Social Media http://www.DCPatient.us/2009/11/a-patients-perspective-on-day-2-of-the-fda-public-hearing-on-social-media/ An Impatient Patient's Perspective on Health Care Today blogged live from Washington DC Mon, 23 Jan 2012 14:53:49 +0000 hourly 1 http://wordpress.org/?v=3.3.1 By: DCPatient http://www.DCPatient.us/2009/11/a-patients-perspective-on-day-2-of-the-fda-public-hearing-on-social-media/comment-page-1/#comment-22 DCPatient Tue, 01 Dec 2009 18:13:44 +0000 http://www.DCPatient.us/?p=100#comment-22 PatientsLikeMe http://www.patientslikeme.com/ has an active MS community that might be helpful and connect you with other patients and sources of information. Be well! PatientsLikeMe http://www.patientslikeme.com/
has an active MS community that might be helpful and connect you with other patients and sources of information.

Be well!

]]> By: Nancy http://www.DCPatient.us/2009/11/a-patients-perspective-on-day-2-of-the-fda-public-hearing-on-social-media/comment-page-1/#comment-21 Nancy Sat, 28 Nov 2009 22:06:10 +0000 http://www.DCPatient.us/?p=100#comment-21 I am really interested in blogs for MS. Are there any that are sponsored by the medical field or pharmas (can they?) that offer the most information about the various meds out there? I have watched the YouTube videos about administering shots, but I want to keep up to date with the latest news about the newest advances. Any suggestions? Thank you in advance. I am really interested in blogs for MS. Are there any that are sponsored by the medical field or pharmas (can they?) that offer the most information about the various meds out there? I have watched the YouTube videos about administering shots, but I want to keep up to date with the latest news about the newest advances. Any suggestions? Thank you in advance.

]]> By: Kelly Young http://www.DCPatient.us/2009/11/a-patients-perspective-on-day-2-of-the-fda-public-hearing-on-social-media/comment-page-1/#comment-18 Kelly Young Sun, 15 Nov 2009 15:59:01 +0000 http://www.DCPatient.us/?p=100#comment-18 "Pharmaceutical companies and other regulated entities should listen more than talk and only interact to provide value to patients, as defined by patients." This last is key because you are drawing a boundary line, even if it is only in sand. We, the patients, are the most important voice and the one last heard. We must be taken seriously. Thank you Donna for doing your part. I look forward to reading more of your blog. .-= Kelly Young´s last blog ..<a href="http://feedproxy.google.com/~r/RheumatoidArthritisWarrior/~3/aD0sHtLayGQ/" rel="nofollow">Being Blessed While Having Rheumatoid Arthritis</a> =-. “Pharmaceutical companies and other regulated entities should listen more than talk and only interact to provide value to patients, as defined by patients.” This last is key because you are drawing a boundary line, even if it is only in sand. We, the patients, are the most important voice and the one last heard. We must be taken seriously. Thank you Donna for doing your part. I look forward to reading more of your blog.
.-= Kelly Young´s last blog ..Being Blessed While Having Rheumatoid Arthritis =-.

]]> By: DCPatient http://www.DCPatient.us/2009/11/a-patients-perspective-on-day-2-of-the-fda-public-hearing-on-social-media/comment-page-1/#comment-17 DCPatient Sat, 14 Nov 2009 16:00:44 +0000 http://www.DCPatient.us/?p=100#comment-17 Lisa, and Rob, thank you so much for your comments and support. Lisa I look forward to reading more of your work on HealthCentral and hope to run into sometime soon. Be well Lisa, and Rob, thank you so much for your comments and support. Lisa I look forward to reading more of your work on HealthCentral and hope to run into sometime soon.

Be well

]]> By: Rob Halkes http://www.DCPatient.us/2009/11/a-patients-perspective-on-day-2-of-the-fda-public-hearing-on-social-media/comment-page-1/#comment-16 Rob Halkes Sat, 14 Nov 2009 12:40:28 +0000 http://www.DCPatient.us/?p=100#comment-16 Great insight into things that really matter with regard to patients' concerns in pharma and health, as well as patients' needs for really meaningful information and (!) the need to be reassured through interaction and dialogue with trusted authorities. I think that this is the key underlying need! Isn't it? Thanks for these insights! Rob Halkes Great insight into things that really matter with regard to patients’ concerns in pharma and health, as well as patients’ needs for really meaningful information and (!) the need to be reassured through interaction and dialogue with trusted authorities. I think that this is the key underlying need! Isn’t it?
Thanks for these insights!
Rob Halkes

]]> By: Lisa Emrich http://www.DCPatient.us/2009/11/a-patients-perspective-on-day-2-of-the-fda-public-hearing-on-social-media/comment-page-1/#comment-15 Lisa Emrich Sat, 14 Nov 2009 04:37:02 +0000 http://www.DCPatient.us/?p=100#comment-15 Wonderful, wonderful post!! Thank you for attending the hearings and speaking up on behalf of the patient's point of view. I understand that you were present at HealthCentral's even last night. I write for HealthCentral (on MS and RA) and certainly wish that I had met you. I've seen your tweets and truly appreciate your contributions. Keep it up!! Wonderful, wonderful post!! Thank you for attending the hearings and speaking up on behalf of the patient’s point of view.

I understand that you were present at HealthCentral’s even last night. I write for HealthCentral (on MS and RA) and certainly wish that I had met you. I’ve seen your tweets and truly appreciate your contributions.

Keep it up!!

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