Archive for June, 2011

Calling all Cancer Patient Advocates!!!

June 28th, 2011

In my estimation, the FDA does the best job of any federal agency of effectively supporting and leveraging empowered patients in meaningful ways.

Here is a great example:
If you are interested in learning more about how the FDA develops and regulates drugs and meet the actual people involved please consider registering for this Patient Network Conference. Registration is free!

Dear Patient Advocacy Community,

The Food and Drug Administration’s Office of Special Health Issues is sponsoring a Patient Network Conference that will take place on Friday, July 15th, 2011, from 8:00 a.m. to 5:00 p.m. at the FDA Campus at White Oak. The address for the FDA Campus is 10903 New Hampshire Avenue, Building 31 Great Room, Silver Spring, MD, 20993.

This conference will include sessions addressing a variety of topics for the oncology patient advocacy community including drug, biologic, and device development and regulatory processes as well as interactive sessions with management from the Office of Oncology Drug Products in the Center for Drug Evaluation and Research. Attached is a draft agenda.

Seating for the conference will be limited to the first 150 persons. The conference will also be available via live webcast. The web link for this will be provided closer to the conference date.

To register for the conference, please send an email to: with the following information:

First Name:
Last Name:
Preferred Attendance: In Person or Webinar
Current Role:
– FDA Patient Representative
– Patient Advocacy Group
– Patient / Survivor
– Other

For directions, parking, and local lodging information, please refer to the following website:

We look forward to seeing you on July 15th.

Best Regards,
FDA Patient Network Conference Team