About

DCPatient

DONNA R. CRYER, JD

I hiked the Grand Canyon at age 13, weeks after being diagnosed and hospitalized for ulcerative colitis, an inflammatory bowel disease, graduated Harvard/Radcliffe College on the verge of liver failure, and received a liver transplant  between first and second years at Georgetown University Law Center.  My surgeons enticed me out of the Justice Department’s Criminal Division to become a patient affairs specialist for the United Network for Organ Sharing at an auspicious time when the federal government was trying to take over the organ donation and transplantation system and ignited a 17 year career in non-profit and for-profit healthcare organizations.  From kidney stones to fertility treatments, my frequent and varied interactions with the healthcare system in urgent care clinics, emergency rooms, boutique practices, and nation’s top academic medical centers  (hopefully) lends a compelling and unique perspective on my current work as President of the Global Liver Institute, the innovation and collaboration platform for the liver community.

For a decade,  I have led CryerHealth, a healthcare consulting firm providing strategic counsel to top biopharmaceutical companies, patient advocacy organizations, and emerging technology firms on patient engagement in health information technology, drug discovery, and clinical decision making.I was the first patient to serve as Chair and then President & Chief Executive Officer of the American Liver Foundation, the largest and oldest national non-profit organization serving liver disease patients and their families and in 2014 founded the Global Liver Institute.

My e-health experience includes participating in the launch of the Office of National Coordinator for HIT (ONC) consumer engagement campaign and serving on the ONC technical expert panel on patient-generated health data, participating as a member of the White House e-health equity taskforce and the judging panel on the White House design challenge on innovating the electronic patient medical record.

I have the privilege of serving as a patient representative to the U.S. Food and Drug Administration, a merit reviewer for the Patient Centered Outcomes Research Institute (PCORI), and a member of Stakeholder Advisory Group to the NIH Learning Health System Research Collaboratory. Additionally, I serve on the Gastroenterology Board of the American Board of Internal Medicine, the Board of the Personalized Medicine Coalition, a member of the Patient and Consumer Advisory Council for the Center for Medical Technology Policy, and Advisor to HarborPath, a patient assistance program for those living with HIV/AIDS and HCV.

I earned an undergraduate degree from Harvard/Radcliffe Colleges and  a Juris Doctorate from the Georgetown University Law Center.

 

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